What a difference a year, an inquisitive doctor and knowledge can make!
In early 2015, I started to develop periodic issues with what i thought was heartburn. That summer, while at a baseball minor league game, i became ill and after going to the local ER, the doctors decided to do a CT scan. Little did i know that scan would indicate i had cancer and change my world forever. In July, i had surgery to remove that and after another CT and an Octreoscan, the surgeon and oncologist did not see anything and thought..."great, she's cured". Fortunately, my PCP did some research and made contact with the National Institute of Health and was able to help in getting me accepted to the Gallium Dotatate scan. The scan showed the NETs has spread to my liver. I will never forget that day - i realized how lucky i was to have had a doctor who knew enough to suspect a rare disease..the 'zebra', or Neoruendicrine Cancer. His suspicions led me to proper treatments and to Dr. Eric Liu.
Neuroendicrine cancer (or NETs) affects rougly 5 people for every 100,000. There is no cure....yet. Sadly, many fellow patients with NETs are not diagnosed properly and do not get the necessary medical treatment or interactions with NET specialists early enough. Symptoms get worse and sadly, we lose many far too early.
I feel so lucky and blessed that my doctors knew enough to suspect the unexpected and send me for further testing. I work with a local oncologist in my hometown of Richmond, VA and see Dr. Liu as my Neuroendicrine Cancer specialist who helps advising the right care at the right time to manage my chronic condition and helps me maintain a great quality of life.
Did i mention I am a runner? Note I didn't promise i was fast. After my surgery when i was unable to run, I came to really miss what my health would not allow me to do and my passion for running grew stronger. For me, running allows me the freedom to get away from the stress of our everyday world and helps keep me active and in shape. It has also introduced me to a local running community in Richmond who are some of the finest people I know and would do absolutely anything to support each other. As long as I can outrun 'the bear' (for me, my bear is cancer), I am a winner! I have chosen to travel to Denver to run the Rock 'N' Roll 5K and Half Marathon Oct 15-16, 2016. That's right, a little over 3 miles on Saturday and 13 miles on Sunday. I chose this race as Denver holds a special place in my heart as it is now home to Dr. Eric Liu, Surgical Oncologist at The Neuroendocrine Institute at Rocky Mountain Cancer Centers and chief medical director of The Healing Net Foundation.My goal is to raise $1,630 - to represent the 13.1 miles i will run/walk in the Half Marathon race.
Please join in supporting the Healing Net Foundation. The Healing Net helps provide doctors with information on Neuroendicrine Cancer so faster diagnosis can be made which aids in getting patients the proper treatments and medications to help in managing their disease. Time lost due to a lack of information and misdiagnosis can significantly impact a patient's quality of life and can shorten life expectancy.
I view this as an opportunity to run for those who can't and appreciate all of your support and encouragement along the way.
|Hillary McTigue||11/18/2016||$75.00||Run, Cindy, Run!!!! :-) :-) Here's to you!||CINDY PARCELL||10/22/2016||$15.00||This donation was raised by the Richmond Sportsbackers Half Marathon Springboks Training Team and given to Cindy on 10/21. Organized by Coach Henry Witz, the team rallied to support Cindy and the Healing Net. Thank you Coach Henry (XOXO).||Lynne Tickle||10/17/2016||$30.00||This is my match for our fellow sorority sisters who rose to my challenge to donate!||Ann Marie Hickey||10/17/2016||$25.00||Congratulations on your run, Cindy! You are an inspiration!||Alice Middleton||10/17/2016||$25.00||Leslie Shakespeare||10/17/2016||$60.00||I thought I had donated, so I'm pleased I have another chance AFTER your fabulous finish, Cindy!||Rosemary Jacobshagen||10/14/2016||$50.00||Good Luck Cindy. You are representing all of us and I'm so glad you are able to participate in this event. Take care.||Bill and Mary K Weston||10/14/2016||$25.00||Enjoy a great run ! Love supporting The Healing Net Foundation . Say Hi to all the gang at PSL !||Lynnette Stieb-Sorensen||10/14/2016||$50.00||Cindy, Thank you for your commitment to our cause. You ROCK! Good Luck and Congratulations.||Mike Larson||10/13/2016||$20.00||Rebecca Randolph||10/13/2016||$10.00||Cindy - you are awesome! From Rebecca and Garth||Sossi Bilanjian||10/13/2016||$50.00||Shanelle Burnett||10/12/2016||$20.00||Good luck Cindy! Show them how RVA crushes 13.1 miles!!||Gretchen Waldo||10/12/2016||$50.00||Stay Strong!||Janet Areson||10/12/2016||$25.00||Jodi Miller||10/12/2016||$25.00||You got this Cindy! Run strong! So proud of you!||Kiersten Helgerson||10/12/2016||$25.00||Way to go, Cindy! Love you, my friend!||Melissa Custis||10/12/2016||$25.00||Dale McLennan||10/12/2016||$50.00||Carole Ramser||10/12/2016||$20.00||Run Cindy Parcell||Estella Haines||10/12/2016||$25.00||Go Cindy!||Tom Hackenberg||10/12/2016||$25.00||Good luck Cindy, you'll do great. You're an inspiration and will represent the RVA running community well!||Anonymous Friend||10/12/2016||$100.00||Lori Hatcher||10/12/2016||$75.00||You are an inspiration Cindy and a great coach. Best of luck in your races this weekend.||Julie Michael||10/08/2016||$50.00||Awesome that you are able to do this! Here's to a successful race!||Allison Parcell||10/03/2016||$40.00||Kathy Halpaus||10/02/2016||$131.00||You've got this girl!! Thank you for being a great inspiration and one of my favorite coaches!!||Courtney Legum-Wenk||10/01/2016||$50.00||Good luck Cindy!||Rainey Niklawski||10/01/2016||$10.00||You'll do awesome!!||Anonymous Friend||10/01/2016||$131.00||Mary and Rob Ashby||09/27/2016||$50.00||LELA SELBY||09/27/2016||$25.00||Cindy: Your story and your commitment to walking/running 13 miles for NET awareness is not only impressive but inspiring. Blessings to you.||Rachel Kurz||09/24/2016||$25.00||Lynne Tickle||09/23/2016||$100.00||You rock, Cindy! Kick butt like you always do!||Sarma Vadlamani||09/23/2016||$51.00||Pam Hunter||09/22/2016||$20.00||Lots of love & continued healing & running!!||LuAnn & LeRoy Orie||09/22/2016||$50.00||May your efforts help lead to improved detection and treatment for NET cancers.||Ellen Anne Calhoun||09/22/2016||$50.00||In memory of Elva L. Herndon.||Kerrie Arkwell||09/22/2016||$25.00||You are such an inspiration!||Terry Diebold||09/22/2016||$25.00||Your courage is inspiring and running/raising funds for those who can't exemplifies your humility and generosity of spirit.||Anonymous Friend||09/21/2016||$25.00|